Awardees will be notified in October. A scholarship for people with hemophilia B to use for any type of post-high school education. Children with parents or sibling affected by chronic disease are also eligible. She began her career at United Press International, then spent a decade reporting for the Bureau of National Affairs, Inc. (now Bloomberg Industry Group). Deafness, Hearing Loss, Hearing or Ear Conditions. Awards two to three individuals with neurological disabilities, or the child of that person, for post high school education yearly (once a year). The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to be used for college or training program costs next spring. Program provides scholarships to students with a documented language-based disability. Awards $3500 college scholarships to childhood cancer survivors, under the age of 25. Provides a one-time scholarship for cancer patients/survivors attending college. A scholarship for girls diagnosed with turner syndrome to take part in activities such as camps, pottery lessons, music, or gymnastic classes. Chronic, Serious or Life Threatening Illnesses. Inclusion on this list does not serve as official recognition by the NIH that a disease is rare. Program provides two $500 scholarship to college and university students with a mobility disability. Program provides a $1000 educational scholarship for individuals who have been diagnosed with Autism Spectrum Disorder (ASD/Autism). Scholarship awarded to an outstanding undergraduate student who is being treated for a diagnosed mental health condition. Program awards scholarship to men with hemophilia or von Willebrand disease, and their immediate family members pursuing higher education. Program offers a scholarship to any current or soon-to-be undergraduate who has had their life changed due to an injury from a car or truck accident. Program offers scholarships to individuals with disabilities pursuing higher education. Program provides scholarships to further educational opportunities for children with cancer accepted to accredited collegiate studies. An educational scholarship for disabled service members and honorably discharged Gulf War veterans, or a spouse of a deceased service member and honorably discharged Gulf War veterans. Please check back in March for program information for the 2023 academic year. National Hemophilia Foundation - Novo Nordisk, Inc. National Hemophilia Foundation - The Coalition for Hemophilia B, National Organization of Lesbian and Gay Scientists (NOLGS), Paralyzed Veterans of America Headquarters, Rexanna's Foundation for Fighting Lung Cancer, Shaundrika Taylor Cancer Foundation, Inc. (STCF), Sickle Cell Thalassemia Patients Network (SCTPN) - Brooklyn, Susan Satriano Memorial Scholarship Foundation, Teen with a Dream - A Pediatric Cancer Foundation, The Colburn-Keenan Foundation, Inc. (CKF), The SamFund - Support for Young Adult Cancer Survivors, The Susanna and Lucy DeLaurentis Charitable Foundation, Transplant Recipients International Organization, Inc. (TRIO), Turner Syndrome Society of the United States, United States Association of Blind Athletes, United States Association of Blind Athletes (USABA), University of North Texas (UNT) - Eagle Student Services Center, University of Wisconsin Madison Office for Students with Disabilities, Veterans United Home Loans - Veterans United Foundation, Women's Independence Scholarship Program, Inc. (WISP). Provides scholarships to individuals with traumatic spinal cord injuries. Program provides educational scholarships to disabled adults pursuing a career or vocation in any artistic field. Program provides financial assistance for dependents of victims, or those involved in rescue efforts in terrorist attacks in the 9/11, pursuing post secondary education. Program provides scholarships to one female and one male student athlete who are legally blind pursuing a higher education. Program provides a $1500 scholarship to a college student diagnosed with hemophilia or other bleeding disorders. Diseases requiring enteral or parenteral care, Gastrointestinal Disorders. Program awards a scholarship to individuals relying on HPN, HEN, or HPEN for their primary nutritional needs, to further their educational goals. Physical Disability, Spina Bifida, Chronic, Serious or Life Threatening Illnesses, Spinal Cord Injuries, Urostomy, Transverse Myelitis, Ileostomy, Neurogenic Bladder, Colostomy. Addiction, Substance Abuse, Mental Illnesses. This study was a retrospective review of MD patients in HK. Provides over 10 scholarships to students with learning differences who have proven financial need and other specific requirements. Two $500 Chinn Scholarships for LGBTQ Atheist Activism that recognize atheist activism in the area of LGBTQ equality. Program awards scholarships for students affected by epilepsy and other seizure disorders pursuing higher education. We are inspired by the opportunity presented by the RAREis Scholarship Fund to accelerate the aspirations of adults with rare diseases, and to showcase that the experience of rare disease does not have to limit ones dreams, he added. Program offers need-based scholarships and educational experiences to high achieving cancer survivors pursuing a music related field of study. It does not provide medical advice, diagnosis or treatment. Program awards scholarships for LGBTQ high school seniors who are actively and substantially involved in community service. Program awards a scholarship to young cancer survivors. . Program provides a scholarship of up to $500 to students diagnosed with cystic fibrosis. Shes won a Society of Professional Journalists award for outstanding reporting. We outline how this translation between rare and common disease vocabularies can be tailored to fit different applications. Lyme Disease, Chronic, Serious or Life Threatening Illnesses, Chronic, Serious, or Life Threatening Illnesses in Children. Hemophilia, Bleeding/Clotting Disorders, Von Willebrand Disease. Program offers a scholarship to students with a disability attending the University of Utah. Program offers single year and multi year educational scholarships awards to students with cystic fibrosis. Notify Me Interested in learning about additional scholarship opportunities? Learning Disability, Speech and language Delays or Impairments. Texas Associated Press Broadcasters Scholarship Recipient, 2019-2020 - . Program awards scholarships for the legally blind attending a technical college. In conclusion, this map helps build a foundation for bridging genome biology and medicine and enabling new biomedical discoveries by connecting existing resources and tools across the spectrum of rare and common disease. Provides scholarships to incoming freshman with type 1 diabetes who are US citizens or permanent residents seeking education at an accredited college, four year university, trade school or technical school. Awards are granted without regard to race, color, creed, religion, sexual orientation, gender, disability, or . Psoriasis, Psoriatic Arthritis, Crohn's Disease, Ankylosing Spondylitis, Rheumatoid Arthritis, Uveitis, Ulcerative Colitis, Hidradenitis Suppurativa, Juvenile Idiopathic Arthritis. You are now leaving the #RAREis Community website. by Gastrointestinal Disorders, Cancers, Chronic, Serious or Life Threatening Illnesses. Bleeding/Clotting Disorders, Von Willebrand Disease, Hemophilia . While scientific advances continue for many of these diseases, individuals living with such disorders still encounter obstacles in achieving traditional life milestones. Two $2,500 scholarships each year awarded to immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency. Educational scholarship awards of $2,500 to immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency to further higher education. March 15, 2023 - Scholarship Application Window Opens. STUDENT SCHOLARSHIP PROGRAM FAQs Who is eligible for a student scholarship award? Provides scholarships to high school seniors living with a chronic disorder and continuing their education at a college or university. A scholarship for high school seniors, undergraduates, graduates as well as international students with a documented learning disability. by Mary Chapman August 19, 2020. Scholarships are open to any adult living with a rare disease in the U.S. who is over the age of 17. that will help to offset the cost of virtually attending NORD's Rare Diseases & Orphan Products Breakthrough Summit. RARE Mental Health Impact Grant. An education scholarship for active duty or honorably discharged U.S. veterans. Program offers scholarship to an individual with Down syndrome pursuing their dream of entrepreneurship. Provides over $20,000 in scholarships for camps to families affected by diabetes. Awardees will be notified in October. Program provides a scholarship to players who have an immediate family member diagnosed with cancer. Program awards a scholarship to a blind or visually impaired female undergraduate student studying music. Program awards a scholarships to men with hemophilia pursuing higher education. An educational scholarship awarded to hearing children of deaf adults to help them pursue their post-secondary education. Scholarship offered to an individual or a close family member of an individual who has autism. All scholarship recipients will be selected by an EveryLife Foundation-appointed, independent board of reviewers. $3,000 scholarship to an ROTC student in the Air Force option who is attending a university located in the AFCEA Mid-South Region of the United States, including Louisiana, Mississippi, Alabama, and northwest panhandle of Florida. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling . Program awards scholarships to individuals living with bipolar disorder, schizophrenia, schizoaffective disorder acquire the educational and vocational skills needed to reintegrate into society. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to be used for college or training program costs next spring. Program offers scholarships to college students affected by gastro-esophageal cancers in their families. Program offers scholarship to survivors of childhood cancer who are seeking higher education. Kidney and Urology Foundation of America, Inc. Lupus Foundation of America Florida Chapter, Lupus Inspiration Foundation for Excellence (L.I.F.E. Program provides up to 3 scholarships towards college education to siblings of childhood cancer survivors. Program awards scholarships to high school seniors with disabilities pursuing higher education. Primary Immunodeficiency, Bleeding Disorders, Cancers, Infertility, Hepatitis C, HIV Treatment/Prevention, Diabetes, Rheumatoid Arthritis, Multiple Sclerosis, Crohn's Disease, Asthma, High Cholesterol. Provides scholarships to veterans or spouses of disabled veterans who have served in the United States military, including the Reserves and National Guard pursuing higher education. Communication Disorders, Speech Impairment. 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